Now that chemotherapy has finished and I have had the scan results Clare and I are keen to get back to as normal a life as possible so this is the last post from me as I face getting fit again and hoping the cancer stays away for many many years.
If I start again it will be bad news and the cancer is back so here's hoping this is it for a lonnnnnggggg time. In the meantime I am going to life my life to the fullest. Cancer is terrible for the sufferer and loved ones but it gives you a unique perspective on life only a few can relate to. Without labouring this it's time to look at life a whole new way. If you are lucky enough to share a pint with me I will no doubt bore you with what all this means to me :)
It's been a hell of a year but I am looking forward and will deal with the complexities of living with this disease the very best I can. On the plus side I have a great wife and kids and a lovely new baby daughter. My boss and colleagues have been incredibly supportive and I am very thankful to my friend Jon for his charity efforts. Also we owe a lot to many others from the school mums who helped out with school runs to those who put up with me when I was not feeling too cheerful about my situation.
I do plan my own charity event next October next year. Inspired by Jon and others I plan a coast to coast cycle run in Ireland to raise money for research into lymphoma. I will no doubt run a blog on these adventures and chase everyone for sponsorship :)
That's all fom me. Wish us luck and thanks for reading.
Tuesday 6 December 2011
Scan results
Got scan results today. Summary is I have good partial remission (complete is very rare with my disease). All the enlarged lymph nodes are pretty much normal size with the exception of 1 which is greatly reduced from 5cm x 5cm to 1.7. Normal size is 1cm and the enlarged one may only be that size due to scar tissue. All round a good result and consultant is happy.
What's next?
Well as planned I get maintanence treatment every 8 weeks for 2 yrs. This only takes a couple of hrs and has no side effects. How long I stay in remission is unknown. Could be a couple of years or could be 20. Who knows. The maintanence treatment is to push the cancer further away and keep me in remission so if that does the trick I will be good.
When it does return i will have a few options. A stem cell transplant which although currently risky can cure the cancer or possibly other treatments and many are on the horizon which can cure or greatly extend remission. Thinking positive here.
The best I can do in the meantime is get healthy, live well and get stuck into the greatest life possible with my lovely kids and Clare. 1st step is to get well then start on the push to fitness and live healthily.
Right now I feel pretty good and although far from 100% well I am working longer days than before and feeling more up to the normal day to day.
What's next?
Well as planned I get maintanence treatment every 8 weeks for 2 yrs. This only takes a couple of hrs and has no side effects. How long I stay in remission is unknown. Could be a couple of years or could be 20. Who knows. The maintanence treatment is to push the cancer further away and keep me in remission so if that does the trick I will be good.
When it does return i will have a few options. A stem cell transplant which although currently risky can cure the cancer or possibly other treatments and many are on the horizon which can cure or greatly extend remission. Thinking positive here.
The best I can do in the meantime is get healthy, live well and get stuck into the greatest life possible with my lovely kids and Clare. 1st step is to get well then start on the push to fitness and live healthily.
Right now I feel pretty good and although far from 100% well I am working longer days than before and feeling more up to the normal day to day.
Saturday 26 November 2011
Last Achy week
Had mild back pains all week as well as odd stomach muscle and neck pains. Seems to be easing a bit tho. Glad it's the last week of these aches. Should just have the fatigue to deal with from next week and pushing to kick that as soon as I can!
Starting early planning for my charity bike run. Very early in fact as I won't do it until Oct! Looking at cycle computers with Gps as my Xmas pressie and have my contact at charity comg back to me on routes in Ireland and training plan hopefully. Aiming to get on my bike next week and very slowly ease in. So looking forward to being fit.
In other news kids already getting xmas mad here. School Xmas fayre tomorrow. Should be fun!
Starting early planning for my charity bike run. Very early in fact as I won't do it until Oct! Looking at cycle computers with Gps as my Xmas pressie and have my contact at charity comg back to me on routes in Ireland and training plan hopefully. Aiming to get on my bike next week and very slowly ease in. So looking forward to being fit.
In other news kids already getting xmas mad here. School Xmas fayre tomorrow. Should be fun!
Tuesday 22 November 2011
Award winner
Last night I attended an awards event hosted by luekemia and lymphoma research in London. My friend Jon was invited for his run and he kindly asked me to join him.
What a great evening. Great to see so many great fundraisers, drink champagne with Jon with an amazing view of London and event better Jon won an award for his run. Alastair Campbell presented it to him as well! It was very bizarre hear Alastair Campbell talk about me, Criterion Games and baby Lily. Was great to see Jon up there get the award. Great job!
The whole thing really inspired me for my own biking charity event next year and I have a contact at the charity now who will help me get this organised.
In other news it's achy week and so far I am not feeling too bad despite my night out. Took the last of my drugs this morning as well so threw the pharmacy paper bag in the bin with an amazing sense of pleasure! Another milestone met. Just over 1 week until my scan!
What a great evening. Great to see so many great fundraisers, drink champagne with Jon with an amazing view of London and event better Jon won an award for his run. Alastair Campbell presented it to him as well! It was very bizarre hear Alastair Campbell talk about me, Criterion Games and baby Lily. Was great to see Jon up there get the award. Great job!
The whole thing really inspired me for my own biking charity event next year and I have a contact at the charity now who will help me get this organised.
In other news it's achy week and so far I am not feeling too bad despite my night out. Took the last of my drugs this morning as well so threw the pharmacy paper bag in the bin with an amazing sense of pleasure! Another milestone met. Just over 1 week until my scan!
Wednesday 16 November 2011
Final chemo done!
Last treatment yesterday. Fairly usual crappy experience. Spent afternoon in bed and after helping get kids to bed went off to bed again myself. Feeling better today but still pretty tired.
I have a scan in just over 2 weeks followed by appointment with doc to go over results then that's me until first maintanence treatment in 8 weeks.
Really hoping achy week not bad this week and I am on road to normality by Xmas.
I have a scan in just over 2 weeks followed by appointment with doc to go over results then that's me until first maintanence treatment in 8 weeks.
Really hoping achy week not bad this week and I am on road to normality by Xmas.
Wednesday 9 November 2011
Frustrations
Hate to moan, but hell it's my blog so who cares, but what a mixed week. For a week 3 it's been challenging because I have pushed myself harder than ever under treatment and been frustrated I cannot achieve as much as I want. I should probably be chuffed I have managed so much but instead I am annoyed how I still feel held back. I am such high maintanence!
We had a fireworks party over at neighbours which we all enjoyed, was godfather at a best friends baby's baptism in London and had two full days of meetings at work - first full days since chemo started.
And it's only Wednesday night!
Looking forward to the weekend, getting my chemo out of the way and looking forward best I can. I am so glad Tuesday's is the last. I am sick of the drugs, sick of the tiredness, sick of putting Clare through the stress of picking me up with the kids cos I can't drive, sick of those hospital beds, the smell, the food, every little detail of the experience of being in the hospital.
We had a fireworks party over at neighbours which we all enjoyed, was godfather at a best friends baby's baptism in London and had two full days of meetings at work - first full days since chemo started.
And it's only Wednesday night!
Looking forward to the weekend, getting my chemo out of the way and looking forward best I can. I am so glad Tuesday's is the last. I am sick of the drugs, sick of the tiredness, sick of putting Clare through the stress of picking me up with the kids cos I can't drive, sick of those hospital beds, the smell, the food, every little detail of the experience of being in the hospital.
Wednesday 2 November 2011
Ouch!
Week 2 and it's achy achy time. Suffering awful back pains this time but trying to resist the heavy pain killers as they could upset me and i am taking enough crap right now.
Taking the afternoons to rest so I can work in morning and help with kids at night but still suffering. Trying to be positive that the next time I go through this will be at end of chemo but still pain is hard and making me grumpy as hell.
Taking the afternoons to rest so I can work in morning and help with kids at night but still suffering. Trying to be positive that the next time I go through this will be at end of chemo but still pain is hard and making me grumpy as hell.
Sunday 30 October 2011
Day of the Big Run
Today Jon Lawrence, my friend and colleague ran the Great South Run and beat his record time. As Jon would say 'Strong!'
He has raised nearly £3,500 for Leukemia and Lymphoma Research, an amount that EA will match. The man should be very proud of himself!
He even made it to be fund raiser of the month. I am very touched by his commitment and effort to raise much needed funds and many thanks to all those people who sponsored him.
In other news, we all went to a Halloween and Fireworks party on Friday night. The kids loved it and we had a really nice time eating and drinking outside at the country club as it was such a mild night.
End of the half term holidays today. Its been a tough one what with it being treatment week but the good news is only 2 weeks until the final round of chemo.
On Tuesday my consultant took me through the steps thereafter:
I will get a scan on 1st of December to assess how well treatment has gone then starting 10th Jan I will get what's called maintenance treatment every 8 weeks for 2 yrs to keep the cancer in remission. At least that's the theory and in most cases what happens.
So looking forward to Xmas now. Starting to get some aches and pains as usual for this stage but nothing too troublesome yet.
He has raised nearly £3,500 for Leukemia and Lymphoma Research, an amount that EA will match. The man should be very proud of himself!
He even made it to be fund raiser of the month. I am very touched by his commitment and effort to raise much needed funds and many thanks to all those people who sponsored him.
In other news, we all went to a Halloween and Fireworks party on Friday night. The kids loved it and we had a really nice time eating and drinking outside at the country club as it was such a mild night.
End of the half term holidays today. Its been a tough one what with it being treatment week but the good news is only 2 weeks until the final round of chemo.
On Tuesday my consultant took me through the steps thereafter:
I will get a scan on 1st of December to assess how well treatment has gone then starting 10th Jan I will get what's called maintenance treatment every 8 weeks for 2 yrs to keep the cancer in remission. At least that's the theory and in most cases what happens.
So looking forward to Xmas now. Starting to get some aches and pains as usual for this stage but nothing too troublesome yet.
Friday 21 October 2011
Prestige
Not a bad week despite having a cold. Been busy at work and home with the baby. Feeling a bit sore tonight but I think that's just tiredness from the busy week.
After months of play when I could get time I have finally hit Prestige on Call of Duty modern warfare 2 (rank 70+). Clare is happy cos i have been playing for a while and playing this game online winds me up.
Gaming season has very much begun with a new big hitter out every Friday. Now if only I had more time to play!
Quiet weekend planned this weekend. Lots of nice fAmily time before round 7 of chemo on tues.
After months of play when I could get time I have finally hit Prestige on Call of Duty modern warfare 2 (rank 70+). Clare is happy cos i have been playing for a while and playing this game online winds me up.
Gaming season has very much begun with a new big hitter out every Friday. Now if only I had more time to play!
Quiet weekend planned this weekend. Lots of nice fAmily time before round 7 of chemo on tues.
Monday 17 October 2011
Clan Gathering
Had my parents, sister and brother in law visit until Sunday which was busy but really nice. Unfortunately I now have a cold so dealing with that and hoping it does not get any worse.
Was nice to see the family, take them out for a lovely lunch and get some time out with Clare.
Week 2, traditionally the 'achy back week' was less severe that my last cycle but still slowed me down a bit.
Lily doing well. Over a month already and full of smiles for daddy - result!
Getting into the groove of week 3 with added sniffles.
One more week then its cycle 7 - the penultimate one. Feels like the end is getting closer. Can't wait to feel healthy again!
Was nice to see the family, take them out for a lovely lunch and get some time out with Clare.
Week 2, traditionally the 'achy back week' was less severe that my last cycle but still slowed me down a bit.
Lily doing well. Over a month already and full of smiles for daddy - result!
Getting into the groove of week 3 with added sniffles.
One more week then its cycle 7 - the penultimate one. Feels like the end is getting closer. Can't wait to feel healthy again!
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