Well it's 5 days in now. Felt achy and tired every day but no sickness. Getting pains in different parts of body which is common and energy levels still suck. Tired often after the most basic task. Steroids screwing with me a little as well...making it hard to sleep and a wee bit agitated. Thankfully steroids finished for this cycle now.
Being ultra careful of infections. Washing hands a lot - super obsessive. Typical bad luck Neve has a tummy bug as well!
Despite all this off to not a bad start. Hoping this continues and I don't get anything worse in later cycles. Although I am told fatigue increases over months. Feels like a long road ahead...cycle 8 ends at start of December!
Clare reading up a lot on disease and various developments on horizon to prolong remission from it's return. Amazes me cancer research and research for other major diseases happens largely on donations, when we pay so much tax and pay for lovely big royal weddings etc!
We are starting a regular donation to the lymphoma association ourselves so we can do our bit.
Got out in the woods today with clare and the kids which was great. Also really nice to drive my mini with Plan B blaring out :)
Trying to keep life as normal as possible for sake of the kids.
Amazing stuff and great reading about this Alan. We are all supporting you and our thoughts arwe with you
ReplyDelete