Saw consultant today with clare.
I have a small amount of lymphoma in bone marrow making me stage 4. Fairly typical for disease to be discovered at this stage. As doc says 'it kind of creeps up on you unawares'.
Tough day in many ways but good to have clare with me and she felt a lot more positive. We are left with the choice of either:
1. Do nothing and get regular scans to check disease is not putting me at threat.
2. Go on chemo to try and get it into remisssion.
Chemo is pretty grim and has small risks of causing another cancer such as leukaemia so not an easy decision. Also I would be on it for 6 months roughly meaning we would go through first few months of babies life with me feeling pretty crap.
We both think option 2 right now as doc advises this based on his concern that a swollen node deep in abdomen could put my kidney at risk if it grows unchecked. This could happen in the background with no other symptoms and not be seen a couple of months when I get a scan.
Feel less scared about chemo from meeting. Lots of potential side effects but hopefully I would be lucky. Also chemo planned for my condition is not the heavy full on one.
Other positive news is that although not curable i have a good prognosis. 85% chance of 10 plus year survival.
Sounds like not a long time but less scary than before.
Doc left me to take time to think before mking final decision.
Met oncologist nurse as well which was helpful. Going to meeting with her tomorrow to find out more about chemo.
Last twist of day was CT scan showed up what could be a clot on lung. Unusual at this age but they want to investigate in case a pulmerry emblism (spelling??)
What an experience! Never thought I'd spend so much time at hospital! It's like another world.
After appointment clare and I went for thai food to chill and chat then collected kids from clares friend, Helens, house.
Kids had a great time there. Kids are a strange tonic right now. They keep up smiling and very busy!
Leg better tho. Plaster off and docs says it's healing well.
Thinking of going away for weekend so we can all relax and get space to think.
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