Had my brother visit over the weekend which was busy but nice. I felt pretty good over the weekend so we managed to go for a walk and take the kids swimming. This week my parents, sister and brother in law visit which I am looking forward to. I have even been uber organised and sorted out Xmas presents for them to take home with them.
Unfortunately the aches and pains have set in again so I am not sleeping or functioning as well as I would like. Hoping pains subside so I have energy to do family stuff.
My friend Jon, who is running the Great South Run has managed to get a piece about his run and I in the lymphoma association newsletter and website so I have been writing my contribution for this about my diagnosis and experience with cancer. All good publicity to hopefully raise more money and awareness.
Tuesday, 11 October 2011
Wednesday, 5 October 2011
Number 6. 2 to go!
My third week on cycle 3 was great. After the pain and frustration of week 2 I felt almost normal. I felt focussed at work and in good spirits. What a roller coaster! Was also nice to see my Bro at the weekend.
Go round 6 chemo yesterday and feel not too bad so far but week 2 is the one to watch. Got my detailed results from scan and all pretty good. Swollen lymph nodes all heading down and termed as 'partially reduced'. Doc happy with this so hopefully they will keep shrinking as much as possible. I will get a scan at end of chemo then another 1 yr into my maintanence therapy.
My niece and nephew did the Cumbrian run this weekend to raise funds for lymphoma research. Very proud of them!
My friend jon also does the great south run at the end of the month.
Lily, clare and kids doing well. Clare dealing with lily still at nights so I can rest. My wife needs some kind of medal! She is great!
Parents, sister and bro in law visiting next week which is great so hoping week 2 more forgiving than the last time!
Go round 6 chemo yesterday and feel not too bad so far but week 2 is the one to watch. Got my detailed results from scan and all pretty good. Swollen lymph nodes all heading down and termed as 'partially reduced'. Doc happy with this so hopefully they will keep shrinking as much as possible. I will get a scan at end of chemo then another 1 yr into my maintanence therapy.
My niece and nephew did the Cumbrian run this weekend to raise funds for lymphoma research. Very proud of them!
My friend jon also does the great south run at the end of the month.
Lily, clare and kids doing well. Clare dealing with lily still at nights so I can rest. My wife needs some kind of medal! She is great!
Parents, sister and bro in law visiting next week which is great so hoping week 2 more forgiving than the last time!
Thursday, 22 September 2011
Frustrated...
Productive at work and nice wander out at lunch but then tonight I am knackered and suffering lots of muscular pain.
Been like this for most evenings this week. Not sure if it's because life is busy with baby or what but aches and pains a killer this time. Hoping this subsides later this week so I feel better soon.
Other news is baby Lily is doing well. She is so good. Clare taking the brunt so I can rest in evenings so we are both knackered...no fun.
Been like this for most evenings this week. Not sure if it's because life is busy with baby or what but aches and pains a killer this time. Hoping this subsides later this week so I feel better soon.
Other news is baby Lily is doing well. She is so good. Clare taking the brunt so I can rest in evenings so we are both knackered...no fun.
Wednesday, 14 September 2011
Half Time Results
Cutting to the chase my scan results are good. My consultant has not looked at detail but all swollen lymph nodes, including the worrisome one deep inside are down nicely. He seemed pretty happy...so am I to say the least!
More detail in next appointment in 3 weeks. Also small lumps I found on my back a while back - that I have been keeping quiet about on blog - are very likely lypomas (spelling?) - harmless fatty tissue most of us have. Amazing how paranoid you get about your body going through something like this. Doc says they did not show up on CT scan plus ultra sound results good.
Other bonus is no planned Bone marrow check at the end. He will do another scan at end before I go on maintenance therapy at end of chemo.
So 5 down and 3 to go.
Very bizarre being in the hospital for chemo with Clare and my new born baby. All the nurses were coo'ing over her while all I could think about was how do I get my blood test done!
So far a little tired but hard to judge as we have baby Lily to look after although clare is doing most of the hard work through the night.
She is a good wee baby all round and the kids love her. Clares mum heads home to Scotland on Saturday so we are on our own from then. Her help has been invaluable this past few weeks.
More detail in next appointment in 3 weeks. Also small lumps I found on my back a while back - that I have been keeping quiet about on blog - are very likely lypomas (spelling?) - harmless fatty tissue most of us have. Amazing how paranoid you get about your body going through something like this. Doc says they did not show up on CT scan plus ultra sound results good.
Other bonus is no planned Bone marrow check at the end. He will do another scan at end before I go on maintenance therapy at end of chemo.
So 5 down and 3 to go.
Very bizarre being in the hospital for chemo with Clare and my new born baby. All the nurses were coo'ing over her while all I could think about was how do I get my blood test done!
So far a little tired but hard to judge as we have baby Lily to look after although clare is doing most of the hard work through the night.
She is a good wee baby all round and the kids love her. Clares mum heads home to Scotland on Saturday so we are on our own from then. Her help has been invaluable this past few weeks.
Sunday, 11 September 2011
Dad Again
Little Lily was born on Saturday at 1am. She is 8 pounds 6 and a little sweetie. Clare was amazing.
Clare went in as planned to be induced on Saturday but as it happened the early stages of labour were starting so luckily no need for much help to bring the baby on. I arrived at the hospital at midnight after a call from clare to say it was all happening and baby was born just after 1am. A very fast labour...thank god for that as a I am not sure now I would have managed a long one with my fatigue.
Clare and lily got home next day so now we are settling in to baby world again. The kids love her and so far she has been pretty good although she was awake a lot last night. Clare is taking the brunt to let me sleep. She really is awesome. Her mum is still here as well which is a great help, cutting down othe chores and entertaining the kids a bit.
Had my scan on Tuesday so less than 36 Hrs to wait for results. I so hope I have good news.
Clare went in as planned to be induced on Saturday but as it happened the early stages of labour were starting so luckily no need for much help to bring the baby on. I arrived at the hospital at midnight after a call from clare to say it was all happening and baby was born just after 1am. A very fast labour...thank god for that as a I am not sure now I would have managed a long one with my fatigue.
Clare and lily got home next day so now we are settling in to baby world again. The kids love her and so far she has been pretty good although she was awake a lot last night. Clare is taking the brunt to let me sleep. She really is awesome. Her mum is still here as well which is a great help, cutting down othe chores and entertaining the kids a bit.
Had my scan on Tuesday so less than 36 Hrs to wait for results. I so hope I have good news.
Saturday, 3 September 2011
No baby yet
No arrival of baby yet. Due date is actually mid month but Clare was early with Connor and Neve so expected the same.
Clares mum is here and has been a good help to us both. It's the last week of the school holidays as well.
I managed to work all week as usual despite some really nasty back ache mid week. Right now not feeling too bad at all, just tired from a busy day out with the kids.
Scan on Tuesday and results when I go in for next treatment on 13th.
Clares mum is here and has been a good help to us both. It's the last week of the school holidays as well.
I managed to work all week as usual despite some really nasty back ache mid week. Right now not feeling too bad at all, just tired from a busy day out with the kids.
Scan on Tuesday and results when I go in for next treatment on 13th.
Monday, 29 August 2011
Bank holiday weekend
After a fun busy bank holiday weekend I am knackered. We went to Thai food festival and a local air show called Wings and Wheels. Was a lot of fun with the kids but lots of aches and pains in back and shoulders tonight. Still happy I managed to do everything we wanted.
Frustrated I could not eat all the lovely prawns at the Thai festival tho. When chemo is done I am eating shellfish by the tonne!
At work tomorrow and then picking up Clares mum from the airport so early night tonight!
No baby yet! Hoping for arrival this coming weekend...
Frustrated I could not eat all the lovely prawns at the Thai festival tho. When chemo is done I am eating shellfish by the tonne!
At work tomorrow and then picking up Clares mum from the airport so early night tonight!
No baby yet! Hoping for arrival this coming weekend...
Thursday, 25 August 2011
2 days after cycle 4 chemo
Not too bad. Little bit tired and achey but better than cycles 1 and 2 by far. I get a scan in 2 weeks so I will know much better how treatment is going when I get results in mid sept for cycle 5. Fingers and everything crossed!
Hoping I am fit for a busy bank holiday weekend. No baby arrived yet but all set!
Hoping I am fit for a busy bank holiday weekend. No baby arrived yet but all set!
Sunday, 21 August 2011
Getting close to half way
My 4th of 8 cycles of chemo is due on Tuesday. Been feeling ok most of this week until today - feel tired. I think it's due to having visitors and going out for dinner last night tho. It was great to see my brother and nephew and take Clare out for dinner at Kinghams in Shere but paying the price today. Never mind hopefully a restful sleep and I will be feeling a bit better.
Interesting development in the news - they have discovered that modified ecstasy could be a great treatment for leukaemia and lymphoma. So maybe a future of raves is ahead for me. Sounds like the Shamen were right about Ebenezeer after all :)
Wish me luck for Tuesday!
Interesting development in the news - they have discovered that modified ecstasy could be a great treatment for leukaemia and lymphoma. So maybe a future of raves is ahead for me. Sounds like the Shamen were right about Ebenezeer after all :)
Wish me luck for Tuesday!
Wednesday, 17 August 2011
Every cycle seems a little different
Been working until around 3 this week which has been cool. Lots to keep me busy so enjoying that.
Fatigue has been fairly manageable this cycle but I have had aches and pains to varying degrees throughout. Each cycle really does seem a little different.
Meeting my good old mate Ewen tonight for dinner which will be really nice. He's just become a dad so lots to catch up on!
Also my bro and nephew arrive tommorrow so a busy few days ahead before I hit cycle 4! Half way there nearly!!
Fatigue has been fairly manageable this cycle but I have had aches and pains to varying degrees throughout. Each cycle really does seem a little different.
Meeting my good old mate Ewen tonight for dinner which will be really nice. He's just become a dad so lots to catch up on!
Also my bro and nephew arrive tommorrow so a busy few days ahead before I hit cycle 4! Half way there nearly!!
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