Last treatment yesterday. Fairly usual crappy experience. Spent afternoon in bed and after helping get kids to bed went off to bed again myself. Feeling better today but still pretty tired.
I have a scan in just over 2 weeks followed by appointment with doc to go over results then that's me until first maintanence treatment in 8 weeks.
Really hoping achy week not bad this week and I am on road to normality by Xmas.
Wednesday, 16 November 2011
Wednesday, 9 November 2011
Frustrations
Hate to moan, but hell it's my blog so who cares, but what a mixed week. For a week 3 it's been challenging because I have pushed myself harder than ever under treatment and been frustrated I cannot achieve as much as I want. I should probably be chuffed I have managed so much but instead I am annoyed how I still feel held back. I am such high maintanence!
We had a fireworks party over at neighbours which we all enjoyed, was godfather at a best friends baby's baptism in London and had two full days of meetings at work - first full days since chemo started.
And it's only Wednesday night!
Looking forward to the weekend, getting my chemo out of the way and looking forward best I can. I am so glad Tuesday's is the last. I am sick of the drugs, sick of the tiredness, sick of putting Clare through the stress of picking me up with the kids cos I can't drive, sick of those hospital beds, the smell, the food, every little detail of the experience of being in the hospital.
We had a fireworks party over at neighbours which we all enjoyed, was godfather at a best friends baby's baptism in London and had two full days of meetings at work - first full days since chemo started.
And it's only Wednesday night!
Looking forward to the weekend, getting my chemo out of the way and looking forward best I can. I am so glad Tuesday's is the last. I am sick of the drugs, sick of the tiredness, sick of putting Clare through the stress of picking me up with the kids cos I can't drive, sick of those hospital beds, the smell, the food, every little detail of the experience of being in the hospital.
Wednesday, 2 November 2011
Ouch!
Week 2 and it's achy achy time. Suffering awful back pains this time but trying to resist the heavy pain killers as they could upset me and i am taking enough crap right now.
Taking the afternoons to rest so I can work in morning and help with kids at night but still suffering. Trying to be positive that the next time I go through this will be at end of chemo but still pain is hard and making me grumpy as hell.
Taking the afternoons to rest so I can work in morning and help with kids at night but still suffering. Trying to be positive that the next time I go through this will be at end of chemo but still pain is hard and making me grumpy as hell.
Sunday, 30 October 2011
Day of the Big Run
Today Jon Lawrence, my friend and colleague ran the Great South Run and beat his record time. As Jon would say 'Strong!'
He has raised nearly £3,500 for Leukemia and Lymphoma Research, an amount that EA will match. The man should be very proud of himself!
He even made it to be fund raiser of the month. I am very touched by his commitment and effort to raise much needed funds and many thanks to all those people who sponsored him.
In other news, we all went to a Halloween and Fireworks party on Friday night. The kids loved it and we had a really nice time eating and drinking outside at the country club as it was such a mild night.
End of the half term holidays today. Its been a tough one what with it being treatment week but the good news is only 2 weeks until the final round of chemo.
On Tuesday my consultant took me through the steps thereafter:
I will get a scan on 1st of December to assess how well treatment has gone then starting 10th Jan I will get what's called maintenance treatment every 8 weeks for 2 yrs to keep the cancer in remission. At least that's the theory and in most cases what happens.
So looking forward to Xmas now. Starting to get some aches and pains as usual for this stage but nothing too troublesome yet.
He has raised nearly £3,500 for Leukemia and Lymphoma Research, an amount that EA will match. The man should be very proud of himself!
He even made it to be fund raiser of the month. I am very touched by his commitment and effort to raise much needed funds and many thanks to all those people who sponsored him.
In other news, we all went to a Halloween and Fireworks party on Friday night. The kids loved it and we had a really nice time eating and drinking outside at the country club as it was such a mild night.
End of the half term holidays today. Its been a tough one what with it being treatment week but the good news is only 2 weeks until the final round of chemo.
On Tuesday my consultant took me through the steps thereafter:
I will get a scan on 1st of December to assess how well treatment has gone then starting 10th Jan I will get what's called maintenance treatment every 8 weeks for 2 yrs to keep the cancer in remission. At least that's the theory and in most cases what happens.
So looking forward to Xmas now. Starting to get some aches and pains as usual for this stage but nothing too troublesome yet.
Friday, 21 October 2011
Prestige
Not a bad week despite having a cold. Been busy at work and home with the baby. Feeling a bit sore tonight but I think that's just tiredness from the busy week.
After months of play when I could get time I have finally hit Prestige on Call of Duty modern warfare 2 (rank 70+). Clare is happy cos i have been playing for a while and playing this game online winds me up.
Gaming season has very much begun with a new big hitter out every Friday. Now if only I had more time to play!
Quiet weekend planned this weekend. Lots of nice fAmily time before round 7 of chemo on tues.
After months of play when I could get time I have finally hit Prestige on Call of Duty modern warfare 2 (rank 70+). Clare is happy cos i have been playing for a while and playing this game online winds me up.
Gaming season has very much begun with a new big hitter out every Friday. Now if only I had more time to play!
Quiet weekend planned this weekend. Lots of nice fAmily time before round 7 of chemo on tues.
Monday, 17 October 2011
Clan Gathering
Had my parents, sister and brother in law visit until Sunday which was busy but really nice. Unfortunately I now have a cold so dealing with that and hoping it does not get any worse.
Was nice to see the family, take them out for a lovely lunch and get some time out with Clare.
Week 2, traditionally the 'achy back week' was less severe that my last cycle but still slowed me down a bit.
Lily doing well. Over a month already and full of smiles for daddy - result!
Getting into the groove of week 3 with added sniffles.
One more week then its cycle 7 - the penultimate one. Feels like the end is getting closer. Can't wait to feel healthy again!
Was nice to see the family, take them out for a lovely lunch and get some time out with Clare.
Week 2, traditionally the 'achy back week' was less severe that my last cycle but still slowed me down a bit.
Lily doing well. Over a month already and full of smiles for daddy - result!
Getting into the groove of week 3 with added sniffles.
One more week then its cycle 7 - the penultimate one. Feels like the end is getting closer. Can't wait to feel healthy again!
Tuesday, 11 October 2011
Family time
Had my brother visit over the weekend which was busy but nice. I felt pretty good over the weekend so we managed to go for a walk and take the kids swimming. This week my parents, sister and brother in law visit which I am looking forward to. I have even been uber organised and sorted out Xmas presents for them to take home with them.
Unfortunately the aches and pains have set in again so I am not sleeping or functioning as well as I would like. Hoping pains subside so I have energy to do family stuff.
My friend Jon, who is running the Great South Run has managed to get a piece about his run and I in the lymphoma association newsletter and website so I have been writing my contribution for this about my diagnosis and experience with cancer. All good publicity to hopefully raise more money and awareness.
Unfortunately the aches and pains have set in again so I am not sleeping or functioning as well as I would like. Hoping pains subside so I have energy to do family stuff.
My friend Jon, who is running the Great South Run has managed to get a piece about his run and I in the lymphoma association newsletter and website so I have been writing my contribution for this about my diagnosis and experience with cancer. All good publicity to hopefully raise more money and awareness.
Wednesday, 5 October 2011
Number 6. 2 to go!
My third week on cycle 3 was great. After the pain and frustration of week 2 I felt almost normal. I felt focussed at work and in good spirits. What a roller coaster! Was also nice to see my Bro at the weekend.
Go round 6 chemo yesterday and feel not too bad so far but week 2 is the one to watch. Got my detailed results from scan and all pretty good. Swollen lymph nodes all heading down and termed as 'partially reduced'. Doc happy with this so hopefully they will keep shrinking as much as possible. I will get a scan at end of chemo then another 1 yr into my maintanence therapy.
My niece and nephew did the Cumbrian run this weekend to raise funds for lymphoma research. Very proud of them!
My friend jon also does the great south run at the end of the month.
Lily, clare and kids doing well. Clare dealing with lily still at nights so I can rest. My wife needs some kind of medal! She is great!
Parents, sister and bro in law visiting next week which is great so hoping week 2 more forgiving than the last time!
Go round 6 chemo yesterday and feel not too bad so far but week 2 is the one to watch. Got my detailed results from scan and all pretty good. Swollen lymph nodes all heading down and termed as 'partially reduced'. Doc happy with this so hopefully they will keep shrinking as much as possible. I will get a scan at end of chemo then another 1 yr into my maintanence therapy.
My niece and nephew did the Cumbrian run this weekend to raise funds for lymphoma research. Very proud of them!
My friend jon also does the great south run at the end of the month.
Lily, clare and kids doing well. Clare dealing with lily still at nights so I can rest. My wife needs some kind of medal! She is great!
Parents, sister and bro in law visiting next week which is great so hoping week 2 more forgiving than the last time!
Thursday, 22 September 2011
Frustrated...
Productive at work and nice wander out at lunch but then tonight I am knackered and suffering lots of muscular pain.
Been like this for most evenings this week. Not sure if it's because life is busy with baby or what but aches and pains a killer this time. Hoping this subsides later this week so I feel better soon.
Other news is baby Lily is doing well. She is so good. Clare taking the brunt so I can rest in evenings so we are both knackered...no fun.
Been like this for most evenings this week. Not sure if it's because life is busy with baby or what but aches and pains a killer this time. Hoping this subsides later this week so I feel better soon.
Other news is baby Lily is doing well. She is so good. Clare taking the brunt so I can rest in evenings so we are both knackered...no fun.
Wednesday, 14 September 2011
Half Time Results
Cutting to the chase my scan results are good. My consultant has not looked at detail but all swollen lymph nodes, including the worrisome one deep inside are down nicely. He seemed pretty happy...so am I to say the least!
More detail in next appointment in 3 weeks. Also small lumps I found on my back a while back - that I have been keeping quiet about on blog - are very likely lypomas (spelling?) - harmless fatty tissue most of us have. Amazing how paranoid you get about your body going through something like this. Doc says they did not show up on CT scan plus ultra sound results good.
Other bonus is no planned Bone marrow check at the end. He will do another scan at end before I go on maintenance therapy at end of chemo.
So 5 down and 3 to go.
Very bizarre being in the hospital for chemo with Clare and my new born baby. All the nurses were coo'ing over her while all I could think about was how do I get my blood test done!
So far a little tired but hard to judge as we have baby Lily to look after although clare is doing most of the hard work through the night.
She is a good wee baby all round and the kids love her. Clares mum heads home to Scotland on Saturday so we are on our own from then. Her help has been invaluable this past few weeks.
More detail in next appointment in 3 weeks. Also small lumps I found on my back a while back - that I have been keeping quiet about on blog - are very likely lypomas (spelling?) - harmless fatty tissue most of us have. Amazing how paranoid you get about your body going through something like this. Doc says they did not show up on CT scan plus ultra sound results good.
Other bonus is no planned Bone marrow check at the end. He will do another scan at end before I go on maintenance therapy at end of chemo.
So 5 down and 3 to go.
Very bizarre being in the hospital for chemo with Clare and my new born baby. All the nurses were coo'ing over her while all I could think about was how do I get my blood test done!
So far a little tired but hard to judge as we have baby Lily to look after although clare is doing most of the hard work through the night.
She is a good wee baby all round and the kids love her. Clares mum heads home to Scotland on Saturday so we are on our own from then. Her help has been invaluable this past few weeks.
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